Prof. dr. Vivienne Matthies-Boon

Speech text follows short intro Approx 25 min before the PAIS Protest starts... Today was the PAIS protest in the Hague, organised by patient group Niet Hersteld - which specifically asked for more visibility for these invisible illnesses. Niet Hersteld is ran by Guus Liebrand, a patient with severe MECFS and bedbound for years - and a truly creative powerhouse! What Guus and her volunteers managed to achieve today was amazing - and I am both humbled and honoured to have shar